Camp Familles PKU :
10:00-13:00
Workshop 1: PKU infant Parents Mental Health
Kawtar Mashal, Hospital Universitaire Center, Settat
Laila Lekfy Filali, Escalade-School, Association de Bienfaisance
Dr. Filali, educational psychologist and expert committed to supporting early childhood and adolescents will provide holistic support to mothers whose children are dealing with mental health issues. her goal is to empower mothers by helping them understand and manage the situation in a way that promotes the well-being of the child and the family.
Workshop 2: Finding the right nutrition for PKU patients
Francis Rossignol, National Institute of Health, Bethesda Maryland, USA
Danielle Starin, Rare Disease Institute, Washington, USA
Danielle Starin, Dietitian-Nutritionist at the Rare Disease Institute in Washington, USA, will collaborate with Dr. Francis Rossignol, a team specialist. They will: health check-ups. pediatric neurologists, nutritionists, and dietitians on the latest advancements in PKU screening and therapy.
Workshop 3: Improving PKU Patients quality of life and facilitating effective communication
Firdaouss Kmi treating communication disorders. Her work improves the quality of life of children with difficulties related to language delay by helping patients overcome communication and swallowing disorders, thus care and support to clients of all ages in various clinical and educational settings.
13:00-15:00 Lunch
Workshop 4: Cooking Demo sessions with PKU parents
Mme Najia Hebbazi in coop with Mme Nezha Bourass and Mme Fatime Zahra will manage cooking demo session with all parents
Question and answer sessions where parents can ask healthcare specialists about children's health and development.
This can cover topics like nutrition, is there any Therapies needed, Brain function....
20:00-1:00am Dinner, Reception
Traditional music and costumes from Marrakech
Day Camp other activities for children:
Cooking Demos
Live DJ
Decorate Cupkace
Art & Painting
Puzzle Games...